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Helping a loved one with a spinal cord injury improve the quality of their life is valuable work, but can also be stressful. Explore some keys to easing your caregiving burden.
Being a caregiver for a spouse, parent, child, or other loved one with a spinal cord injury is a role that can be time-consuming, frustrating, and overwhelming. Caregiving requires significant effort and major life changes.
Yet, caregiving can be rewarding too. Fulfilling your commitment to a loved one and selflessly devoting your time to improving their life can be a gratifying experience.
Of course, not everyone chooses to be a caregiver – sometimes the role chooses you. That simple fact can make you feel a loss of control. The good news is that there are many aspects of caregiving you can control.
It takes a village
Over 43.5 million people in the U.S. provide some level of care to an adult or child with a disabling condition or illness. The majority of these caregivers (85 percent) are a relative or loved one. Ironically, even with so many caregivers out there, many report feeling alone and isolated as they go about fulfilling their daily duties. Up to 70 percent of caregivers also report depression.
As you embark on the caregiving journey, it’s vital to pull together a team to assist you in several key areas, such as medical care, health insurance, and even driving. Getting others involved – along with the social interaction – may also keep you from feeling feel alone. Your team may include:
Take care of yourself
Airline flight safety instructions always include a key point about using oxygen masks should the cabin depressurize – you need to take care of yourself first before you help another. That’s an apt analogy if you’re a caregiver.
Attempting to be a caregiver while still managing the other parts of your life can quickly lead to burn out if you don’t make your own wellbeing a top priority. Consider these practical tips to help you maintain good physical and emotional health:
Above all, realize that you are not alone. There are many caregiver-focused organizations with support programs, as well as magazines and libraries that are great sources of additional information.
Family Caregiver Alliance (FCA)
Christopher & Dana Reeve Foundation
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